wun 2022

From FunRaise 

Free Event - September 24, 2022, Westin Waltham-Boston

This free, one day in person conference is for people with narcolepsy, their families, educators, clinicians and researchers. Leading experts share their latest research on treatment options, impact of narcolepsy, transition from pediatric to adulthood, how to live a full life with narcolepsy.

This is a unique opportunity for people with narcolepsy to mix and mingle with sleep doctors, clinicians and researchers. The conference format offers an interesting mix of individual speakers, panels and breakout rooms. Join us for our first in-person event since 2019.

Coffee, breakfast, lunch, snacks and parking are all included with no cost at this free event.

Reserve your room at the Westin Waltham-Boston for a reduced rate of $119 - https://book.passkey.com/e/50313195


Narcolepsy Overview & Research Update: Thomas Scammell, MD, Neurologist and Sleep Medicine Physician, Beth Israel Deaconess Medical Center, Professor of Neurology, Harvard Medical School

Taking Care of Your Mental Health for People with Narcolepsy: Eric Zhou, PhD, Psychologist at Boston Children’s Hospital and Dana Faber Cancer Institute, Assistant Professor of Pediatrics, Sleep Medicine, Harvard Medical School

Looking Into the Future: Emerging Trends in Clinical Trials for Narcolepsy: Gary Zammit, PhD, FAASM, President & CEO, Clinilabs Drug Development Corporation, Clinical Professor of Psychiatry, Icahn School of Medicine at Mount Sinai

Transition from Pediatric to Adult with Narcolepsy: Kiran Maski, MD, MPH, Neurologist and Sleep Medicine Physician, Boston Children’s Hospital, and Assistant Professor of Neurology, Harvard Medical School

Living with Narcolepsy (Journey, Tips and Tricks): Charlie Bain, Senior Account Executive, PWN and Ashley Starr Frechette, MPH, Director of Health Professional Outreach at the Connecticut Coalition Against Domestic Violence, PWN

Narcolepsy Therapies 101: Margaret Blattner, MD, PhD, Neurologist at Beth Israel Deaconess Medical Center, Clinical Instructor, Harvard Medical School

Teen Breakout Session: Led by Stephanie Manuli

Parent Breakout Session: Led by Anne Samarawickrama

Person with Narcolepsy Breakout Session: Led by Liz Guckian


The conference will be held at the Westin Waltham-Boston located at 70 3rd Ave, Waltham, MA 02451.

COVID-19 (date: June 13, 2022)

Wake Up Narcolepsy recognizes that the distribution of COVID-19 infections is highly variable, with cases currently rising in some geographical regions. The situation is rapidly changing.Creating a safe environment for Northeast Narcolepsy Conference participants is of utmost importance to Wake Up Narcolepsy. As the meeting approaches, we will continually review the latest guidelines for COVID-19 risk mitigation and will follow all federal, state, local and facility requirements related to COVID-19, which may change at any time.

Coronavirus information for Massachusetts is available here: https://www.mass.gov/covid-19-updates-and-information.

Thank you to our sponsors for making this event possible: Harmony Biosciences, Orexia Therapeutics and Avadel Pharmaceuticals.